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Joined: 14 Apr 2008
Posts: 2283
Location: Chicago girl stuck in Norway, IA
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Fri Nov 23, 2012 12:55 am (No subject)
Holden looks so precious! I know he'll stay strong because he has a loving family, friends, and God on his side. He will be in my prayers. _________________
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Joined: 04 Feb 2007
Posts: 4333
Location: scotland
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Tue Nov 27, 2012 10:24 pm (No subject)
sorry to hear your grandson has had so many problems and been so unwell sharon, i know its a hard time for him and yourself and all your family, googled it to check exactly what it was and its a shame he has such a bad condition tho at least by sounds of it he will be a very loving child which is at least some comfort, anyway just letting you know i had read your post and do care about you and your grandchild, thoughts are with you xx _________________
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Joined: 19 Sep 2006
Posts: 3768
Location: north carolina
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Wed Nov 28, 2012 1:13 am (No subject)
Thank you Paul, thanks for taking the time to read up on it. He can lead a fairly well life. His calcium levels are fine so now we move onto the GI and kidney Dr. So far so good. The geneticist said he has really good muscle tone and strength. I was really touched by your post it means a lot to me, love ya my friend. _________________